WORLD HAEMOPHILIA DAY 2023: Haemophilia or hemophilia refers to a genetic abnormality which compromises the body’s ability to create blood clots to stop bleeding. World Haemophilia Day is observed on April 17 every year across the globe to bring attention to haemophilia and other types of bleeding disorders. The day is celebrated by the World Federation of Hemophilia (WFH). Below, we look at the theme and history of World Hemophilia Day, how haemophilia is diagnosed and treated, and share some quotes related to the aliment.
World Haemophilia Day 2023: Theme
The theme for World Haemophilia Day, as revealed by the WFH, is “Access for All: Prevention of bleeds as the global standard of care.” The WFH urges policy makers at the local level and governments to give better access to treatment for patients at their homes and develop the provision for preventative treatment.
World Haemophilia Day: History
Canadian businessman Frank Schnabel, who himself was born with severe haemophilia, started the WFH in 1963 at Montreal, Canada. The first World Haemophilia Day was observed on April 17, 1989. The date commemorates Schnabel’s birthday.
Effects of Haemophilia
Haemophiliac patients get bruised easily and may suffer from haemarthrosis, or bleeding into the cavity in the joints and inside the brain. The joints can be permanently damaged and movement can become restricted. Persistent headaches and seizures can affect the brain.
Diagnosis and treatment
Tests are conducted to find whether clotting factors are low or missing in the blood of patients and whether they have a history of haemophilia in their family. Children may be born with the disease and there are tests to determine and treat the condition throughout pregnancy and after childbirth.
SOURCE: NEWS18.COM